Cancer Journey


VIDEOS

2025 Head and Neck Advances

The panel discusses the current standard of care for patients with head and neck cancer who need surgery, the findings of the Keynote 689 study, which...

HPV Advances

Jill Meyer-Lippert, Dr. Jared Weiss, and Dr. Mary Cooley give an in-depth examination of HPV+ head and neck cancer, including vaccination, treatment...

Newest Updates in Head and Neck Cancer

PLAY ALL Videos ASCO 2022 Head and Neck Cancer In this video series Dr. Kathryn Gold, Medical Oncologist specializing in lung, head, and neck cancers...

Patient Education Ambassador Program - Rafeh Naqash MD, Understanding Clinical Trials Part 2

Dr. Rafeh Naqash, one of the participants in the GRACE Patient Education Ambassador Program, shares a fantastic video series on understanding clinical...

Patient Education Ambassador Program - Rafeh Naqash MD, Understanding Clinical Trials

Dr. Rafeh Naqash, one of the participants in the GRACE Patient Education Ambassador Program, shares a fantastic video series on understanding clinical...

ARTICLES

Understanding Recurrent and Metastatic HPV-Positive Head and Neck Cancer

Head and neck cancers linked to human papillomavirus (HPV) are very different from those caused by tobacco or alcohol. The good news is that HPV-positive cancers usually respond better to treatment and often have better outcomes.

Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2025-26

Tell your story and help us help others! Apply online now for this paid opportunity. This program gives a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial. We want to hear from you!

Applications are now closed!... Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2024-25

Tell your story and help us help others! Apply online now for this paid opportunity. This program gives a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial. We want to hear from you!

Please note! We have extended the application period - apply before July 15 to be a part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program

Please note! We have extended the application deadline! Apply by July 15, 2023 to be considered! We are excited to launch our third year of this...

Apply Now! Be a Part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program

We are excited to launch our third year of this program; tell your story and help us help others! Apply Online Now for this paid opportunity to tell...

COMMUNITY FORUM

Information everyone should have :)

Below are patient advocate info links that you may have missed. They were recorded during our targeted therapies forum but these pieces are valuable...

HPV transmission risk

This is regarding french kissing for about 5 min. The woman had radiation for cervical cancer at 20, and a hysterectomy for reoccurance, recently at...

Squamous cell carcinoma at the base of the tongue
Hello, I'm writing on behalf of my 56-year-old uncle, who suffers from recurrent head and neck cancer. His cancer started at the base of the tongue...
ASCO/ESMO 2020 Debio 1143/ Xevinapant Study Update
Here's another end of year review of new data. Watch out, it's hopeful! "Debio/ Xevinapant Study Update What Have We Learned About Debio 1143...
ASCO/ESMO 2020 - KEYNOTE 048 Study Update, What Have We Learned?
Here's a new head and neck cancer video. Not only can't I say enough about how much I appreciate learning about new findings but they speak about the...

RECENT POSTS

Information everyone should have :)
Valuable share!
Last Comment by drpriyankachiripal on Sep 8, 2023 2:36 am
Worried I have a brain tumor/ cancer.
creader,That would be a…
Last Comment by JanineT GRACE … on Sep 5, 2022 2:20 pm
Worried I have a brain tumor/ cancer.
CURE
Last Comment by JanineT GRACE … on Sep 5, 2022 2:20 pm
HPV transmission risk
I am not an epidemiologist,…
Last Comment by dr. weiss on Mar 25, 2022 12:37 pm
HPV transmission risk
Hi and welcome to Grace. I…
Last Comment by dr. weiss on Mar 25, 2022 12:37 pm

Please feel free to post a comment or question!

Forums
Head/Neck Cancer Member Updates

Welcome to the new GRACE site! Here we hope to provide a place for our community members that go beyond lung cancer.  Our amazing faculty is building and we would like to share their knowledge with others, to provide a place for those dealing with other types of cancers.  Share our forum with others, and please consider this a safe place to discuss and ask questions about living with cancer.  

Operations Director for GRACE. Have worked with cancerGRACE.org since July 2009.  Became involved as a caregiver to my best friend, and quickly came to see that GRACE is filling a need in the area of cancer education. 

Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2025-26

Article

Tell your story and help us help others! Apply online now for this paid opportunity. This program gives a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.  We want to hear from you!

Applications are now closed!... Be a Part of the Patient Perspectives: Clinical Trials Storytelling Program - 2024-25

Article

Tell your story and help us help others! Apply online now for this paid opportunity. This program gives a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. Your voice helps to educate and advocate for others who are in or who may be considering a clinical trial.  We want to hear from you!

Please note! We have extended the application period - apply before July 15 to be a part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program

Article
Please note!  We have extended the application deadline! Apply by July 15, 2023 to be considered!
We are excited to launch our third year of this program; tell your story and help us help others!

Apply Online Now for this paid opportunity to tell your story!

 

Apply Now! Be a Part of the Clinical Trials Experiences Through Storytelling - Patient Perspectives 2023-24 Program

Article
We are excited to launch our third year of this program; tell your story and help us help others!

Apply Online Now for this paid opportunity to tell your story!

 

 

GRACE Patient Perspectives: Clinical Trials Experiences Storytelling Program Overview

 

Information everyone should have :)

Forums
Whole Person Care

Below are patient advocate info links that you may have missed.  They were recorded during our targeted therapies forum but these pieces are valuable to anyone. 

 

Nutrition during cancer treatment

 

Finding resources for patient and caregivers

 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Cómo apoyar a tu pareja - Cuidando al cuidador - Parte 2

Article

Formas de hacer frente a las consecuencias del cuidado de otras personas

 

En esta sección, analizamos posibles medidas que podemos tomar para apoyarnos en las luchas que supone ser cuidador.

 

Tomarse un descanso/ Encontrar el "tiempo para mí"

 

Cuidar de alguien parece una ocupación a tiempo completo, pero no tiene por qué serlo. Cuidar de uno mismo nos prepara para desempeñar mejor nuestro papel.

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